The Little Yellow School Bus
A Scrap-Blog of Special Education Memories
This post of mine gets some of the biggest number of hits. Lots of people are reading, or just checking, although few have given a voice. I am still firmly committed to providing a space where those of us who parent special needs children can share and support each other stories. Whether you have posted or not, I can still hear you. Perhaps at some point down the line you will want to share… In the meantime, I have enough stories and tidbits for both of us.
On 12/12/13 D. R shared this about her boys:
What are the cosmic odds? My older son is ADHD and so sensory sensitive, he can hardly tolerate any noises around eating, chewing, swallowing or hearing any human intake of food, breathing sounds/bodily noises in general. My younger son is very learning disabled and has just been diagnosed with Tourettes…he is making more noises in his throat than I’ve ever heard before, and I’m pretty sure tonight I heard him oinking. Do I laugh? Do I cry? Somewhere in the middle? I just know that if I didn’t have a space to share, my life would be very different. I still reach out to community every day. It’s never big enough.
I have a started a project called The Little Yellow School Bus, to raise awareness around how we feel toward special needs children around the world.
As a teacher working with ethnically diverse special needs children, I have seen immigrant families come from other countries where the words “special needs; learning differences; special education” don’t exist, where the acceptance of such issues from ones homeland don’t exist. Shame and isolation can be pervasive in such a setting, with the outcomes of these children questionable.
I am fortunate to live in a part of the United States where I have many resources for my own “special” children, yet my heart continues to break. Around my younger son its education, and feeling fearful that he will go through school as “different,” “stupid,” “slow.” I worry about him making friends and having a positive social experience.
For my older *ADHD+NVLD child, it’s managing his behaviors and lack of social thinking. There have been long periods of time where he alone wore our family out (and still does).
In my profession I have seen parents realize that their child is anywhere from mildly to profoundly impaired, in any number of developmental areas, many for the first time. Sometimes they cry, sometimes they don’t.
I have heard stories of inspiration, exhaustion, frustration, grief and joy. Many of them I have heard directly.
I know it is tough, and I’ve experienced it first-hand. I can attest to many things: having a 4-year old with serious aggression; needing to spackle holes in the walls/doors because his tantrums were so bad; feeling isolated and alone; being that parent who realizes it’s their kid who has serious delays, and may need extensive support, if he is to succeed in school.
Yet it’s been the extreme challenge of it all, that’s brought me the most growth.
I have had to re-invent myself more than once. “Re-invent or Bust,” has become my motto.
If any of this resonates with you, I would love to hear from you.
Share your life with me. Let us come together, here.
Let us be each other’s source of strength, inspiration, joy, and hope. Let us listen to each other’s moments of frustration, exhaustion, challenge, and grief.
I will take anything: the good, the bad and the ugly; the long and the short. A picture, a poem, pictures of projects by your kids. A few lines if you just need to vent. Share what is hard and challenging; share what is amazing and joyful.
Jump right in, I promise I will catch you.
Peace and Pie,
Photography By Diana Ray
9/11/13 N.P shared this about his son: